When deciding to start a blog, one of the things you spend ages thinking about is what to call it… something catchy, something clever, something self-explanatory. Well I have to admit that for me this wasn’t the case. I knew straight away there was only one thing I could call it. Endo-My-Life. Where did this come from? Well it has two parts to it. Firstly, as the name suggests, it’s an account of my life with the disease. And secondly, it describes how I felt when I first discovered I may have it; I felt it was the end of my life as I knew it. And it was.
“I felt it was the end of my life as I knew it”
Now, I don’t want to traumatise anyone who may be reading this that’s just discovered they could have it. Far from it. I want you to know that all those things you’re feeling now – sick to your stomach, anxious, uneasy, shocked, disbelief, fear, sadness, like you want to hide from the world and cry… Well that’s perfectly NORMAL and it’s okay for you to feel that way. In fact, I encourage you to allow yourself to feel that way. From this point onwards, you have to champion the way you feel physically and psychologically because there’s one thing for sure – endo sufferers often experience a lack of empathy and understanding from the world around them. It could be your doctors, it could be your colleagues, it could even be your significant other. The best thing for you to do is to listen to your body, trust your instincts, be kind to yourself, and share your story. Awareness is the only pathway to knowledge and understanding; we have to help others to help ourselves.